One of the nation’s first specialty centers for children and adults with Williams syndrome recently opened at the University of Pennsylvania, write Stephanie Stahl and Brad Nau for CBS News Philadelphia.
“This center is going to be life-changing for families,” said Jocelyn Krebs, director of the Armellino Center of Excellence for Williams Syndrome.
Krebs researched the disorder for decades before her child was born with the condition, which she describes as “an insane coincidence.”
“Suddenly I went from a scientist who understood Williams syndrome very deeply in one way to a mom trying to figure out, what do you do with a kid that has these various challenges?” said Krebs.
Williams syndrome is a rare condition that causes individuals to be unusually friendly, while also experiencing severe heart problems and intellectual disabilities.
The center, in collaboration with Children’s Hospital of Philadelphia, will provide comprehensive care for adults and children with Williams syndrome, along with conducting research on the condition.
The center also includes a sensory room with different ways to reduce anxiety.
With the proper kind of early intervention, individuals with Williams syndrome are able to thrive — something this center aims to help ensure.
Read more about the Armellino Center of Excellence for Williams Syndrome at CBS News Philadelphia.
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